PolicyBrief
S. 4513
119th CongressMay 13th 2026
Multigenerational Caregiving Data Act
IN COMMITTEE

This bill mandates the collection of data on unpaid multigenerational caregivers through major federal surveys to better inform policy.

Andy Kim
D

Andy Kim

Senator

NJ

LEGISLATION

New Bill to Count Multigenerational Caregivers: Better Data for Better Support

Ever feel like you're juggling a million things at once, especially if you're taking care of kids and an aging parent or a sick loved one? You're not alone, and a new piece of legislation, the Multigenerational Caregiving Data Act, is looking to finally get a real handle on just how many people are in that boat.

This bill is all about shining a light on those unsung heroes who provide unpaid care to at least two different age groups—think a child under 18 and an adult over 65, or perhaps an adult with a disability. The big idea here is that our current federal data doesn't quite capture the full picture of these "sandwich generation" caregivers, especially when the care crosses different households. The Act requires the Secretary of Commerce to add a specific question to at least one major federal survey, like the American Community Survey, within three years. This isn't just for numbers; it's about understanding the real-world economic, health, and work challenges these caregivers face. (Sec. 3)

Counting Carers, Not Just Costs

Right now, if you're a working parent also driving your mom to doctor's appointments or managing her medications, your efforts might not show up in the statistics. This bill aims to change that by making sure federal surveys ask directly about these dual caregiving roles. For example, if you're an office worker balancing your daily tasks with school pickups and ensuring your elderly neighbor has groceries, this data collection will help show the scope of that commitment. For someone in the trades, juggling a demanding work schedule with similar family responsibilities, this bill acknowledges their often-invisible labor. The goal is to get a clearer picture so policymakers can develop more targeted support programs, whether that's for workplace flexibility, financial aid, or health resources. (Sec. 2)

Getting the Question Right

Adding a new question to a national survey isn't as simple as just typing it out. The bill is pretty smart about this, giving the Secretary of Commerce the flexibility to tweak the wording, response options, and even where the question sits in the survey. This ensures the question is clear, doesn't add too much burden for the person answering, and keeps the survey's overall methodology solid. Before it goes live, the responsible federal statistical agency has to run some tests to make sure it works well. And here's a key point: answering this question will be totally voluntary. So, you'll have the choice to share your experience or not. (Sec. 3)

What Happens Next?

Once this new question is out there and collecting data, the work isn't over. Within two years of the question being added, the Secretary of Commerce has to send a report to Congress. This report will be a deep dive into how well the question performed: how good was the data? How many people answered? Did it create too much extra work for respondents? It will also recommend if the question should be expanded, changed, or even retired. This report will also be published publicly, ensuring transparency. This systematic approach means we're not just collecting data, but making sure we're collecting good data that can actually make a difference for caregivers across the country. (Sec. 3)