This Act establishes a federal grant program to help states and local school districts fund training and resources for supporting students with epilepsy or seizure disorders.
Cory Booker
Senator
NJ
The Seizure Awareness and Preparedness Act establishes a new federal grant program to help states fund local school districts in supporting students with epilepsy or seizure disorders. Funds must primarily be used to train school staff on recognizing seizures and implementing individualized health and emergency care plans. The bill also mandates specific training for school nurses and bus drivers, ensuring comprehensive, good-faith preparedness for student seizures.
This bill, the Seizure Awareness and Preparedness Act, sets up a brand new federal grant program managed by the Department of Education. The goal is straightforward: make schools safer and better equipped to handle students with epilepsy or other seizure disorders. Essentially, the federal government is offering money—specifically $34.5 million authorized between 2026 and 2030—to states that want to help their local school districts (LEAs) get serious about seizure preparedness. If a state wins one of these competitive grants, it has to pass the money down to local districts, who must then use it primarily for training.
For a school district to use this money, they have to meet some strict requirements that impact almost everyone working in the building. The core requirement is that staff must be trained on seizure awareness and preparedness, specifically covering a student’s Individualized Health Care Plan and Individualized Emergency Health Care Plan. Think of these plans as highly detailed, doctor-signed blueprints for what to do when a student needs medical attention or has a seizure. They detail everything from daily care to specific emergency steps, including accommodations for sports or field trips.
Every school nurse who coordinates care must ensure all staff—from the teacher in the classroom to the coach running the after-school program—get trained at least once every two years. This training isn't just a quick video; it must be an approved course provided by a national nonprofit focused on epilepsy support. This measure is huge for parents, bringing a level of standardization and required competency that hasn't existed before. It means less worry that a substitute teacher or a new aide won't know what to do in a crisis.
The bill specifically calls out bus drivers, requiring them to receive information about the student’s condition and emergency contacts. This is a crucial detail, recognizing that a seizure often happens when a student is away from the main school building. For the staff undergoing this training, the bill offers a significant protection: liability shield. Any school employee, including nurses and bus drivers, won't be held legally responsible for actions taken or not taken in good faith while following the rules of this program. However, this protection vanishes if the employee is found guilty of willful misconduct or gross negligence, which is a fair balance.
For the school district’s budget, there’s a catch: the money must be used to add to existing programs, not replace them. This non-supplanting rule ensures the $34.5 million is used for new training and resources, not just covering costs the state or local district was already supposed to handle. While this is good for students, it means local and state education budgets still need to maintain their current funding levels, preventing them from shifting existing money elsewhere.
While this bill is a clear win for student safety, there are a few areas where the Secretary of Education has a lot of discretion. For instance, the Secretary gets to approve which "national nonprofit organization focused on epilepsy support" can provide the mandated training. This could be a quality control issue; if the approval process is too loose, schools might end up using less effective training programs. Similarly, local districts can use the subgrants for "other related activities" approved by the Secretary. While this flexibility is helpful, it means the actual impact of some of the money will depend heavily on administrative decisions made far away from the local school board.