PolicyBrief
H.RES. 456
119th CongressMay 29th 2025
Expressing support for the designation of the month of May 2025 as "Progressive Supranuclear Palsy Awareness Month".
IN COMMITTEE

This resolution expresses Congressional support for designating May 2025 as Progressive Supranuclear Palsy Awareness Month to promote awareness, support patients, and encourage research for this devastating brain disease.

Suhas Subramanyam
D

Suhas Subramanyam

Representative

VA-10

LEGISLATION

Congress Backs May 2025 PSP Awareness Month: Highlighting Rare Brain Disease

This Congressional resolution is straightforward: it formally designates May 2025 as "Progressive Supranuclear Palsy Awareness Month." This is Congress making an official statement recognizing the seriousness of PSP, a rare and aggressive brain disease.

PSP is often confused with Parkinson’s, but it’s a distinct, progressive condition that causes severe problems with walking, balance, speech, and swallowing. It’s tough—affecting about 30,000 Americans, and right now, there’s no cure or treatment that slows it down. The resolution’s main purpose is to use this official designation to bring public attention to this challenging disease.

The Power of Recognition

While this resolution doesn't allocate new funding or change any laws—it’s a symbolic, non-binding measure—its impact is about visibility. By officially backing PSP Awareness Month, Congress is throwing its weight behind several key goals. First, it aims to support the patients and families already dealing with the disease, offering them official recognition of their struggle. Second, increased awareness can actually help speed up diagnosis; because PSP is rare, people often spend months or years getting misdiagnosed, which delays access to specialized care. Finally, this recognition is meant to boost efforts to find better treatments and a cure, providing a necessary spotlight for researchers.

Commending the Caregivers and Researchers

The resolution doesn't just focus on the disease; it also takes a moment to commend the people fighting it. It specifically praises the researchers, volunteers, organizations, and the families and individuals across the country working hard to support those living with PSP. This is a nod to the often-unseen labor of caregivers and the dedication of medical professionals in a field that desperately needs more attention.

For everyday people, especially those who know someone struggling with a rare disease, this resolution is a positive signal. It means that advocacy groups have successfully brought a critical, but often overlooked, health issue into the national conversation. While it won't change your bank account balance or your commute time, it offers a tangible boost to the medical community and the families dedicated to finding answers for PSP.