PolicyBrief
H.RES. 236
119th CongressMar 21st 2025
Expressing support for the goals of a "NICU Baby's Bill of Rights".
IN COMMITTEE

Expresses support for a "NICU Baby's Bill of Rights" to promote family-centered care, informed consent, and mental health support for families with babies in neonatal intensive care units.

Erin Houchin
R

Erin Houchin

Representative

IN-9

LEGISLATION

NICU Baby's Bill of Rights: A Push for Family-Centered Care

This resolution champions a "NICU Baby's Bill of Rights," aiming to transform the experience for families with infants in neonatal intensive care units (NICUs). It's all about making sure parents are not just visitors, but active partners in their baby's care, right from the start. The resolution specifically encourages hospitals to adopt family-centered care, meaning parents are involved in every step, from daily care to major medical decisions.

Making Informed Choices

The resolution stresses the importance of informed consent. This means parents have the right to get clear, complete information about their baby's treatment options, including potential risks and benefits. It covers everything from treatment plans to the choice of using donor human milk. No more rushed decisions or confusing medical jargon – parents get the full picture, in plain English.

Family First in the NICU

It's not just about medical decisions. The resolution calls for hospitals to truly prioritize parental presence and collaboration. Think of it as recognizing that parents are the constant in their baby's life, even in the NICU. It even urges hospitals to bring family advocates into the process of creating policies, ensuring that the voices of those who've been through the NICU experience are heard.

Taking Care of the Caregivers, Too

Beyond the baby's immediate care, the resolution acknowledges the immense emotional toll on parents and caregivers. It highlights the need for comprehensive mental health support, including access to counseling and support programs. This addresses the increased risk of perinatal mood and anxiety disorders among NICU parents – because taking care of the caregivers is crucial for the whole family's well-being.

Planning for the Homecoming

Finally, the resolution emphasizes thorough discharge planning, with the family actively involved. It is about making sure families are equipped with the knowledge, resources, and support they need to confidently care for their baby once they leave the hospital.