This bill establishes a pilot program to provide grants for training family caregivers of young children with autism or developmental disabilities in essential skills to improve child well-being and community involvement.
Dave Min
Representative
CA-47
The Autism Family Caregivers Act of 2025 establishes a new pilot program to award grants for evidence-based skills training to family caregivers of children with autism or developmental disabilities. This training aims to improve child well-being and community engagement by focusing on communication, daily living skills, and caregiver self-care. The Secretary of Health and Human Services will oversee the program, which requires grantees to establish diverse advisory committees and report annually on program effectiveness. Funding is authorized through fiscal year 2030 to support at least 25 entities across multiple states.
The Autism Family Caregivers Act of 2025 is setting up a new five-year pilot program designed to give a major boost to families caring for young children with autism or developmental delays. Think of it as the government stepping in to fund the kind of specialized training that most families currently have to pay for, hunt down, or simply go without.
This bill establishes the Caregiver Skills Training Pilot Program, run through the Health Resources and Services Administration (HRSA). The core idea is simple: the government will award grants of at least $500,000 over five years to organizations that can provide evidence-based skills training to family caregivers—at absolutely no cost to the families. This training is specifically aimed at adults caring for children aged 0 to 9 with a qualifying diagnosis.
What does this training cover? It’s practical stuff. The bill mandates that the curriculum must include strategies for improving the child’s communication and social engagement, daily living skills, and critically, how to manage challenging behaviors. It also requires a focus on caregiver self-care and coping strategies—a necessary nod to the intense, often isolating, work of family caregiving.
The Secretary of Health and Human Services is required to award grants to at least 25 different organizations spread across no fewer than 15 states. The organizations applying for these grants—which can be nonprofits, health centers, or academic medical centers—need to prove they have at least three years of experience providing culturally appropriate services, especially in underserved areas. They must also show experience in mental health services, recognizing that co-occurring conditions are common.
This is where the bill gets smart about accessibility. Grant recipients must use the funds to reach diverse families and make sure the training is available in a way that respects different cultural and linguistic backgrounds. For a family in a rural area or one where English isn't the primary language, this focus on cultural and linguistic appropriateness (Section 2) could be the difference between getting necessary help and getting none at all.
Every organization that receives a grant must set up a local stakeholder implementation committee. This isn't just bureaucratic window dressing; this committee must include family caregivers, pediatric experts, educators, and local community representatives. This structure ensures that the training isn't designed in a vacuum but is grounded in the real, daily needs of the people it serves.
Furthermore, the bill demands accountability. HRSA must conduct an annual evaluation to see if the training is actually moving the needle—checking for improvements in the children’s skills and in the caregivers' confidence. Within six months of awarding the first grants, and again by the end of Fiscal Year 2027, the Secretary must report back to Congress on the program's effectiveness and best practices. This focus on measurable outcomes suggests the program is designed to be scaled up if it proves successful.
This pilot program is authorized to receive $10 million annually through Fiscal Year 2030. For a parent juggling work, appointments, and the round-the-clock needs of a young child with a developmental disability, this bill offers a significant potential relief valve: free, quality, evidence-based training that can make daily life easier and help the child thrive. It’s a direct investment in the most critical—and often most overlooked—part of the care system: the family caregiver. Importantly, the funding is meant to supplement, not replace, existing services like those covered by Medicaid or IDEA, meaning families won't lose existing help just to access this new training.