This Act aims to combat the rise in syphilis cases, particularly congenital syphilis, by providing guidance and technical assistance to state Medicaid and CHIP programs to improve screening, education, and treatment for pregnant women and infants.
Juan Ciscomani
Representative
AZ-6
The Maternal and Infant Syphilis Prevention Act addresses the alarming national spike in syphilis cases, particularly the resulting rise in devastating congenital syphilis cases. This bill directs the Secretary of Health and Human Services to issue comprehensive guidance to state Medicaid and CHIP programs on improving syphilis screening, education, and treatment access for pregnant women and infants. The goal is to promote consistent, timely testing—including third-trimester and delivery screening—to prevent nearly all cases of congenital syphilis.
The Maternal and Infant Syphilis Prevention Act is a direct response to a public health crisis: the massive, decades-long spike in syphilis cases, especially among newborns. The numbers are grim—over 209,000 cases in 2023, the highest since 1950, which has translated into a terrifying rise in congenital syphilis, leading to stillbirths and infant deaths. The core of this bill is simple: If we improve testing and treatment for pregnant women, we can prevent almost 90% of these tragic outcomes. This legislation aims to standardize those improvements across the country.
This bill acknowledges that the current patchwork of state screening rules isn't working. While most states require an initial syphilis test during the first prenatal visit, far fewer require testing late in the third trimester or at delivery. Since syphilis can be acquired any time during pregnancy, waiting until the third trimester or delivery is often the last-ditch effort to catch the infection before it causes severe, lifelong damage to the baby—or worse. The bill’s findings section lays out the stakes: 3,882 cases of congenital syphilis in 2023, resulting in 252 stillbirths and 27 infant deaths. This is a crisis that demands a unified strategy.
The real action is in Section 3, which requires the Secretary of Health and Human Services (HHS) to issue detailed guidance within 12 months to state Medicaid and CHIP programs, as well as the Indian Health Service (IHS). For most people, Medicaid and CHIP are the primary—or only—source of prenatal care, so targeting these programs makes sense. This guidance isn't just a suggestion; it must outline best practices for several key areas.
For the average person relying on these services, this means your care should get more consistent and robust, especially if you live in a state that currently has lax screening rules. The guidance must specifically focus on ensuring that testing happens during the third trimester and at delivery. If you’re a pregnant woman covered by Medicaid, this bill aims to make sure your provider doesn't miss a crucial window to protect your baby.
One of the most practical provisions requires the HHS guidance to include strategies for integrating telehealth services. For someone living in a rural area far from a clinic, or someone struggling to take time off work for appointments, telehealth can be a game-changer for screening and follow-up. Crucially, this section also mandates that the guidance address making interpreters available and providing resources about congenital syphilis in multiple languages. This is a necessary nod to the reality that healthcare access often hinges on language and geographical barriers.
While the bill is a positive step toward saving lives and improving health outcomes, the devil will be in the details. The HHS Secretary has significant latitude in defining what those “best practices” actually are. Within two years of the bill’s enactment, the Secretary must report back to Congress on how well these practices are actually being implemented across the states. This accountability measure is important because it means the federal government can’t just issue guidance and walk away; they have to follow up to see if it’s actually working on the ground.