PolicyBrief
H.R. 124
119th CongressJan 3rd 2025
Byron Nash Renal Medullary Carcinoma Awareness Act of 2023
IN COMMITTEE

The "Byron Nash Renal Medullary Carcinoma Awareness Act of 2023" amends the Social Security Act to incentivize education about the risk of renal medullary carcinoma for Medicaid recipients with sickle cell disease.

Al Green
D

Al Green

Representative

TX-9

LEGISLATION

Medicaid Bill Adds Cancer Risk Education for Sickle Cell Patients: 'Byron Nash Act' Takes Effect Immediately

The "Byron Nash Renal Medullary Carcinoma Awareness Act of 2023" just changed the game for Medicaid recipients with sickle cell disease. This new law, effective immediately, amends the Social Security Act to push for more education about renal medullary carcinoma (RMC) – a rare and aggressive kidney cancer – among those with sickle cell trait.

What's the Deal with RMC?

This section of the bill makes sure that RMC gets added to the list of conditions that Medicaid wants folks with sickle cell to be aware of. Why? Because people with sickle cell trait are at a much higher risk of developing RMC. We're talking about a cancer that often doesn't get caught until it's advanced, so early detection is key.

Breaking Down the Changes

The main change is a direct amendment to title XIX of the Social Security Act. Essentially, the bill incentivizes healthcare providers to educate patients with sickle cell disease about the risks of RMC. Think of it like this: if you're a farmer, you need to know about potential crop diseases. Similarly, if you have sickle cell, you need to know about RMC. The bill, in Section 2, directly states that services furnished on or after the enactment date are covered, meaning this is happening now.

Real-World Impact

Imagine a college student with sickle cell trait who's on Medicaid. Before this bill, they might not have even heard of RMC. Now, their doctor has a greater incentive to discuss the risks and what symptoms to watch out for. This could mean earlier detection, earlier treatment, and potentially, a better outcome. The same goes for someone working a construction job or running their own small business – knowledge is power, and this bill aims to put that power in the hands of those who need it most.

The Bigger Picture

This bill addresses a very specific, but very real, health disparity. By focusing on a high-risk population, it aims to improve health outcomes and potentially save lives. While the bill is narrowly focused on individuals with sickle cell disease, it highlights the importance of targeted health education for all at-risk populations. It's a step towards making sure everyone, no matter their background, has the information they need to stay healthy.